8 months and 6 days. 252 days. That is how long our sweet boy was here with us.

Wednesday October 16, 2013 is 253 days since Ezra died. This date marks Ezra being gone longer than we had him. It is shocking to me that Ezra has been gone so long. I miss his gorgeous eyes, his little laugh, and the way he felt in my arms. It is impossible to know what to do with our grief. It is so heavy and overwhelming. Somehow we’ve managed to get out of bed each day. We do our best to hug each other tight. And to allow space to grieve the way we each need to grieve. We visit the cemetery often. I need to look at pictures and videos after visiting his grave to remember how truly alive our boy once was.

Ethan and I have been working hard over the past few months with an amazing production company called North of New York to create a Public Service Announcement and to completely revamp our website. Part of the mission of the Hearts For Ezra Foundation is to raise awareness about Spinal Muscular Atrophy. We are proud to release our PSA today,  on this heartbreaking day that reminds us how short Ezra’s time with us was, but how impactful his life continues to be. Please take 3 minutes out of your day to watch it… learn about the disease that took our son’s life…

The Hearts For Ezra PSA:


Please- share this video far and wide. Help us get the word out about this devastating disease.  For more information, you can check out our beautiful new website: www.heartsforezra.org.

We deeply appreciate the support. Thank you. xo