Ezra David Bessey

5/30/12-2/5/13

May 2012

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PUSH PLAY AND SCROLL

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June 2012

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July 2013

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siblings2

August 2013

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keep austin doulad

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September 2012

The month we received the Spinal Muscular Atrophy diagnosis

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October 2012

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November 2012

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EZRA DAVID 199

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December 2012

photo(11)

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January 2013

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sleeping boy

February 2013

February 3rd

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February 4th

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February 5th

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Ezra was born right on time- perfectly on his due date. My labor with him was focused, quick and powerful. When he entered the world, our family was complete… there is such an emptiness without him. It’s impossible for me to think about Ezra’s birthday without thinking about his death. The last picture above was taken a few hours before he died. He was surrounded by love and it could not have been more peaceful. He had been “sleeping” for most of the day… in the last hour his breaths began to space out, so we knew the time was getting close. Right before he took his last breath, he opened his eyes and held my gaze. He then shifted his eyes to Ethan. It was such an act of love.

I never thought in a million years that I would have my child die in my arms. There was also a time when I never thought I would be lucky enough to be pregnant- to feel a baby move from the inside, to watch my belly grow bigger than I ever thought possible. I know what a gift Ezra was to the world and to our family. He taught us about the importance of moments and reminded us of the fragility of life. I feel so lucky to have gotten to be his mama. We have felt immense love from old friends, family, individuals we have never met and our new community in Maine. While it is very difficult for me to want to “celebrate” Ezra’s birthday, I do want to celebrate his life… and his impact on the world. Our sweet boy is never far from our thoughts and always present in our hearts…