Ezra had his PEG tube switched out with a Mic Key button this morning at Maine General and it went really well. Thankfully, the anesthesiologist did not have to intubate Ezra- they were able to do the procedure with just sedation. He came out of it just fine and now has a fancy new port on his belly.

We had an appointment with the pulmonologist today as well. We had a similar experience there as we did in Boston. She checked him over, asked how he has been doing and told us to call if we need anything. No further appointments needed.

Ezra continues to charm everyone with his bright eyes and beautiful smile… and almost everyone comments on his hair. Red, Red, they call me Red.

Thanks for keeping our little guy in your thoughts!